“The first time I went to an event, I was searching for other people who knew what the letters HAE stood for. And I found hope.”

Lesa — Diagnosed with HAE in 1980

Discover Shire live events

Both men and women suffer from hereditary angioedema (HAE), but did you know that women seem to be affected more severely by HAE than men? That's why it's so important for women to learn as much as they can about living with HAE.

Life with HAE

Living With HAE: A Focus on Women and HAE

At this event, you won't just have the opportunity to hear from an HAE expert and a featured Patient Ambassador with HAE. You'll also have the chance to talk openly about what it's like to be a woman with HAE — with other women who know what you're going through. Join us to learn more about how hormones can influence HAE and how HAE can change during various stages of a woman’s life cycle, from puberty to menopause, family planning and more.


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New events are scheduled regularly, so check back soon to see if one is coming to an area near you!


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More special events

HAE Day May 16th

hae day :-)

Every May 16th, the community raises awareness about HAE

learn more at
Rare Disease Day

Rare Disease Day

Help advocate for people with rare diseases on the last day of February

learn more at
HAE National Patient Summit

US HAEA National Patient Summit

The HAE community gathers to learn, connect and raise awareness

learn more at