“The first time I went to an event, I was searching for other people who knew what the letters HAE stood for. And I found hope.”

Lesa — Diagnosed with HAE in 1980

Discover Shire live events

Do you have hereditary angioedema (HAE) or care for a family member who does? It's important to remember that you’re not alone—and to learn as much as you can about HAE. That's why Shire sponsors live events.

HAE as a Family

Understanding HAE as a Family

This Shire-sponsored program includes a presentation designed to increase your understanding of hereditary angioedema (HAE) and how to discuss HAE with members of your family.

For more information, call 1-866-921-8915.
Monday - Friday, 9:00 a.m.-6:00 p.m. ET.

More special events

HAE Day May 16th

hae day :-)

Every May 16th, the community raises awareness about HAE

learn more at
Rare Disease Day

Rare Disease Day

Help advocate for people with rare diseases on the last day of February

learn more at
HAE National Patient Summit

US HAEA National Patient Summit

The HAE community gathers to learn, connect and raise awareness

learn more at