Is It HAE?

"When testing showed that I have HAE, I was relieved to know that my condition had an actual name."

Marsha — Diagnosed with HAE in 1989

Discover your symptoms

Hereditary angioedema (HAE) can be difficult to diagnose because it's rare — and doctors often mistake it for other, more common conditions. HAE can cause painful, disabling swelling anywhere in the body. Attacks can happen without warning and last for days.

Living with symptoms like these can be challenging, to say the least, especially if you haven’t been accurately diagnosed. But once you discover that you have HAE, you can start taking steps to manage your condition.

Start your Symptom Profiler

Answer the following questions and bring the information to your next doctor's appointment. It can help you and your doctor understand your symptoms and decide whether you should be tested for HAE.

Do you experience uncomfortable or painful episodes of swelling?


Where does your swelling occur?
Please check all that apply.





Where on your skin do you experience swelling?
Please check all that apply.






Does your skin itch in the area where swelling occurs?




When your skin swells, do you also get hives?



When you have attacks that affect your abdomen (stomach) area, what symptoms do you experience?
Please check all that apply.







What symptoms do you experience when you have an episode of swelling that affects your throat?
Please check all that apply.




When you have episodes of swelling, do you experience relief from antihistamines, glucocorticoids, and/or epinephrine?




How long does your swelling typically last?




Do you experience attacks of intense abdominal pain with nausea, vomiting and/or diarrhea?


What other symptoms do you experience during your attacks of abdominal pain?
Please check all that apply.






How long do these attacks typically last?




Has anyone else in your family experienced repeated swelling episodes and/or attacks of abdominal pain with nausea, vomiting and/or diarrhea?




When did your symptoms begin?




Before your symptoms start, do you experience any of the following?
Please check all that apply.





Have you noticed that your symptoms usually happen around the time you’ve experienced any of the following?
Please check all that apply.








How many visits to the emergency room have you had in the last year for episodes of severe swelling or attacks of abdominal pain?






Have you undergone a surgical procedure that hasn't helped your symptoms?



Please list any medications you are currently taking.




Save your Symptom Profile!

To save your completed Symptom Profile, just download and print or send it to yourself via email. You'll also receive a helpful Conversation Guide to give to your doctor. These tools can help you discuss your symptoms with your doctor, who will determine whether you should be tested for HAE.

email my Symptom Profile and Conversation Guide