What is hereditary angioedema? Is hereditary angioedema rare? Hereditary angioedema diagnosis Managing hereditary angioedema Hereditary angioedema support

HEREDITARY ANGIOEDEMA

Hereditary angioedema (HAE) is a rare, potentially life-threatening genetic disorder. It can cause intense, sometimes painful swelling in any part of your body. HAE attacks can happen without warning and last for days.

Do you have questions about HAE? We're here to help you find answers. DISCOVER HAE

Is HAE rare?

HAE only affects between 1 in 10,000 to 1 in 50,000 people in the entire world. Because HAE is rare, few people know about it — and that includes doctors. That can make it difficult to find information about HAE. So we've created a space for you to start learning. DISCOVER ANSWERS

Is HAE misdiagnosed?

The average person with HAE goes through approximately 10 years of repeated misdiagnosis before finally receiving an accurate diagnosis.

If you think there's a chance you could have HAE, use our Symptom Profiler to help start the conversation with your doctor.

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Liz Diagnosed with HAE
in 2013

Is HAE manageable?

Currently, there is no cure for HAE. However, there are things you can do to help manage it. HAE can be very different from person to person, so it's important to work with your healthcare team to develop a plan that's right for your specific situation.

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Is HAE support available?

If you or someone you love has a rare disease like HAE, it can feel like few people understand what your life is like. But you’re not alone.

The HAE community is full of people who can relate to your personal experiences.

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Linda Diagnosed with HAE
in 2014