HAE Day Logo

This hae day :–) speak out about the true impact of your HAE.

Take the HAE assessment

Learn about the
genetics of HAE

Does HAE run in families?

Possibility 4 Child without HAE Possibility 3 Child with HAE Possibility 2 Child without HAE Parent with HAE Parent without HAE HAE Gene Normal Gene Possibility 1 Child with HAE

HAE is inherited

Hereditary angioedema (HAE) is usually in the family tree, which is why the word “hereditary” is used in the name “hereditary angioedema.” If one parent has HAE, each child will have a 50% risk of inheriting the condition. If a child does not inherit the disease from his or her parents, he or she will not pass it on to future generations.

Did you know?

In a survey from 2010, HAE patients had an average of 2 immediate and 2 extended family members who had also been diagnosed with HAE.* This means that as a diagnosed patient, you may have family members who also have HAE.

*In a global survey of 313 patients.

My husband and I know HAE is a lifelong condition, so that really motivated us to get our son on a management plan that was right for him as soon as possible.

Beth, Living with HAE and caring for her son who has HAE

Beth, patient living with HAE.

HAE isn't always inherited

HAE is often passed down from a parent, but that's not always the case. Some people develop HAE because of a spontaneous change in their genetic code, so it can't be traced to their family tree.

75%
Inherited gene

25%
No family history

Encourage family members to test for HAE

HAE

Because HAE is rare, some doctors may not be familiar with the condition. You can help empower your family members to discuss the condition with their doctors and encourage them to get a blood test or, in some instances, angioedema genetic test.

If a family member is interested in finding a doctor who knows about HAE, let them know there are specialists who can help diagnose and treat HAE.

FIND AN HAE SPECIALIST
Topics you might like: