HAE patient

Explore real hereditary angioedema (HAE) experiences

HAE patient stories icon.

Read stories from people who have been diagnosed with hereditary angioedema (HAE). Learn from their personal experiences, from living with mysterious symptoms to discovering their diagnosis and beyond.

Liz, patient living with HAE.


Living with HAE

Before being diagnosed with HAE, Liz and her sister spent years experiencing mysterious symptoms—and building an unbreakable bond.

Chaeli, patient living with HAE.


Living with HAE

Chaeli's journey with HAE has been an evolution from fear to freedom, which began in childhood. Today, she's bravely navigating life with HAE.

Watch helpful videos of people with hereditary angiodema (HAE)

These patients living with HAE share their stories about everything from their search for an accurate HAE diagnosis, to what it's like to have family members with HAE and more.

Meet Liz, a Takeda Patient Ambassador

Liz is a wife, mother, sister and daughter with HAE. Before her diagnosis, she spent years searching for something to explain her mysterious symptoms.

Inheriting HAE

Several people in Chaeli's family have HAE, including her mother. Growing up watching her mom live with HAE made a lasting impact. See how.

HAE and community

Chaeli says that meeting people outside of her family who also have HAE has been life changing for her. Find out why.

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