HAE patient

Hear from people living with the impact of hereditary angioedema (HAE)

Learn how they took steps to better manage their lifelong, ever-changing condition.

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Meet the ambassadors


Beth has HAE, but her story goes beyond her own experience. She also cares for her son Andrew, who had his first attack when he was 6. She wants others to know that experiences with HAE can be difficult and unpredictable, but no one is alone.

Meet the ambassadors, Beth.
Meet the ambassadors, Matt.


Dariela cherishes family time above all else and tries to make the most of every moment in life. Even with HAE, she’s always seeking new ways to create lasting memories with the people close to her.

Meet the ambassadors, Dariela.
Meet the ambassadors, Kevin.
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