Tips for tracking HAE

Liz
Diagnosed with
HAE in 2013

Be proactive when it comes to hereditary angioedema (HAE)

Living with HAE isn’t always easy. An HAE attack can be more than an interruption in your daily routine. It can be physically and emotionally painful, and sometimes scary. Keeping track of your HAE gives you a way to take action and spot any sudden changes in your symptoms or identify patterns over time, so you can share them with your doctor.

Consider using a journal to help:

  • Identify the triggers of your attacks. When you keep details about what you were doing, eating, and feeling before an attack, you can look for similarities between the episodes.
  • Communicate with your doctor. Having a record of the severity and location of your attacks gives your doctor a way to assess and adjust your treatment plan.
  • Stick to your treatment plan. Getting into the habit of tracking your treatment schedule can help you remember to take your medication exactly as your doctor prescribes.
Doctor Discussion Guide Download

Would you like help talking with a doctor about your management plan?

I encourage others to take the first step in owning and being proactive about HAE.

AlexDiagnosed with
HAE in 2014
Download the Advance HAE App to help create your own personal record of life with HAE.

Download the Advance HAE app

Some people prefer paper, but if you’d like an app, the US Hereditary Angioedema Association (HAEA) offers one through the Apple App Store and Google Play. The Advance HAE app makes it quick and easy to create your own personal record of life with HAE.