How to track
your HAE

Be proactive when it comes to HAE

Living with hereditary angioedema (HAE) isn't always easy. An HAE attack can be more than an interruption in your daily routine. It can be physically and emotionally painful, and sometimes scary. Keeping track of your HAE gives you a way to take action and spot any sudden changes in your symptoms or identify patterns over time, so you can share them with your doctor.

Consider using a journal to help
track your HAE
Identify the triggers of
your HAE attacks.

When you write down details about what you were doing, eating, and feeling before an attack, you can look for similarities between the episodes.

Communicate with
your doctor.

Keep a record of the severity and location of your HAE attacks to inform your doctor. This helps them assess and adjust your treatment plan.

Re-examine your
treatment plan.
Plan for an emergency at work.

Take the HAE Assessment and talk to a doctor about your management plan. Writing down the outcomes of these conversations can help you track how well your treatment is working.

Journaling with Liz
Click to play.

I was diagnosed 10 years ago, so I am pretty well acquainted with how HAE affects me every day, but, even so, I learned a couple of things about myself when I sat down with the HAE Assessment Tool.

Matt, Living with HAE

Matt, living with HAE.

Would you like help talking with a doctor about
how HAE impacts your life?

Download the Advance HAE app

Some people prefer paper, but if you'd like an app, the US Hereditary Angioedema Association (HAEA) offers one through your smart phone's app store. The Advance HAE app makes it quick and easy to create your own personal record of life with HAE.

Advance HAE app.

What happens during a hereditary angioedema (HAE) attack?

Before an attack, some patients experience early warning signs, also called prodromes, such as tingling, rash, fatigue, or nausea. Please keep in mind that an HAE attack can also happen without warning, so you should always be prepared in case of an emergency. If you haven't done so already, consider asking your doctor about on-demand treatment. Learn more about symptoms.

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