HAE Resources

"I encourage others to take the first step in owning and being proactive about HAE."

Alex — Diagnosed with HAE in 2014

Discover tools you can start using now

Living with a rare disease can sometimes mean that you don't have easy access to the information, resources and support you need. That's why we're creating a growing list of helpful material that can support you in your journey with hereditary angioedema (HAE).

Hereditary angioedema symptoms profiler

HAE Symptom Profiler

If you think there's a chance you could have HAE, fill out this discussion guide and take it with you to your next doctor's appointment. It can help you and your doctor better understand your symptoms and determine whether you should be tested for HAE.

Start your profile

Hereditary angioedema digital awareness kit

Digital Awareness Kit

The Digital Awareness Kit contains a variety of helpful downloadable resources that can help you understand HAE and explain it to your peers, family members and other people who are unfamiliar with the condition.

Learn more about the kit

Hereditary angioedema emergency medical ID card

Emergency Medical ID Card

If you live with HAE, planning for an emergency can help you feel prepared. Ask your HAE-treating physician to fill out your emergency medical card with your specific treatment plan and his/her emergency contact information.

Download now

Family Champion Program

Family Champion Program

Access tools, information and resources that can help you discuss important HAE information with your family while staying informed and proactive in the HAE community.

Discover the Family Champion program

myACT app from the US Hereditary Angioedema Association

myACT app from the HAEA

The US Hereditary Angioedema Association has created an app that can help you easily store the information needed to manage HAE. The app lets you set up automatic treatment and therapy refill reminders, create reports that detail your life with HAE over time, email your attack reports directly to your physician, and more.

The myACT app can be downloaded from Google Play or Google Chrome. Just search for "myACT app."

Download the app directly now

Help finding a hereditary angioedema doctor

Help Finding a Doctor

Few doctors are familiar with diagnosing and helping people manage HAE. If you need help finding a doctor who knows about HAE, the US Hereditary Angioedema Association (HAEA) provides a simple online tool that can help.

Use the physician finder