Discover tools for
living with HAE

HAE resources, just for you

Living with a rare disease can sometimes mean you don't have easy access to the information, resources and support you need. That's why we're creating a growing list of helpful material that can support you in your journey with hereditary angioedema (HAE).

HAE Assessment Tool


Answer a few questions and bring the results to your doctor so he or she can better understand how HAE is impacting your life.

Start the HAE assessment

Emergency medical card

If you live with HAE, planning for an emergency can help you feel prepared. Ask your HAE-treating physician to fill out your emergency medical card with your specific treatment plan and his/her emergency contact information.

Download the medical card

HAE family brochure

This helpful brochure can help you explain the hereditary aspect of HAE and how important it is for family members to get an HAE blood test.


HAE family health tree worksheet

Use this resource to gather vital information about your family's history of HAE.

Download the HAE family worksheet

Physician letter

Consider asking your doctor to fill in this letter outlining your condition and treatment plan. It can come in handy with everything from going through TSA when you're traveling to helping explain your situation to someone who's not familiar with the condition.

Download the physician letter

Help finding a doctor

Few doctors are familiar with diagnosing and helping people manage HAE. If you need help finding a doctor who knows about HAE, the HAEA provides a simple online tool that can help.

Use the HAE physician finder

Disease education brochure

Learn about the cause, symptoms and management of HAE.

Download disease education brochure

Advance HAE app from the HAEA

The US Hereditary Angioedema Association (HAEA) has created an app that makes it easy to keep your own personal record of life with HAE. The app stores all of your information on your HAE attacks and your HAE therapy/therapies. The app also allows you to create personalized, user-friendly graphs of the data you enter.

Learn more about the HAE app
HAE app.

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Learn about types of treatment

There are two main types of treatment for HAE: preventive and on-demand. Start learning about the options and ask your doctor if they should be included in your HAE management plan.

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