Planning for emergencies

Diagnosed with
HAE in 1980

Be prepared for a hereditary angioedema (HAE) medical emergency

Based on previous studies, about 50% of HAE patients have had an attack of swelling in their throat at least once in their lifetime. Because throat attacks put you at risk of suffocation and can be life-threatening, everyone with HAE should have a plan in place in case of this emergency.

Make your plan with your doctor

Talk with your doctor about what to do in an emergency and make sure you share the information with the people you’re around most. They may need to help you take the necessary steps.

You should know where the nearest emergency room is and how to get there. It can also help for you to contact the hospitals in your area and notify them of your condition, so they will be familiar with HAE should you need urgent care.

Your doctor may prescribe an on-demand treatment to carry with you in case of an attack. Established HAE treatment guidelines recommend everyone with HAE carry on-demand medication, so make sure to ask your doctor if it's right for you.

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Want to learn more about on-demand treatment?

We bought a house across the street from an HAE-educated hospital, so if anything ever happens, we’re ready.

ChaeliDiagnosed with
HAE in 1997

Carry an emergency medical ID card

If you’re in a situation where you are unable to communicate, this card can give medical personnel crucial information. You can ask your doctor to fill it out with you so that it includes accurate information about your condition and any specific direction related to your treatment plan.

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Want an emergency medical ID card you can fill out now? We’ve got you covered.

Print it out and put it in your wallet. While you’re at it, keep a copy on your phone for good measure.