Find an HAE
What doctors diagnose and treat HAE?
When it comes to hereditary angioedema (HAE), finding a doctor who has experience is crucial, but it can also be difficult. Because it's a rare disease, few doctors are familiar with HAE. Fortunately, some doctors, typically allergists or immunologists, do specialize in this area.
Whether you think there's a chance you have HAE or you're trying to find ways to manage your condition, your doctor plays a key role in your health. If you're interested in finding a doctor who is experienced in diagnosing and treating people with HAE, the US Hereditary Angioedema Association (HAEA) can help you locate an HAE specialist in your area.
Finding a specialist was a big turning point for me. I finally felt like I found someone who listened and knew how to help manage a patient with HAE.
Chaeli, Living with HAE
How do you manage hereditary angioedema (HAE)?
While there's no cure for HAE, there are many ways to manage it. There are 2 types of HAE treatment: preventive therapy and on-demand therapy. An HAE specialist might recommend both therapies depending on how frequent or severe your attacks are.
Developing an overall management plan with your doctor can be beneficial. Be sure to keep a record of your HAE attacks, treatment response, and any possible medical side effects so that you can share this information with your doctor at regular check-ins.