Traveling with HAE

Tips for taking a trip with hereditary angioedema (HAE)

Whether you’re taking a trip for work or fun, it’s a good idea to be prepared for any curveballs HAE might throw. You just have to be prepared and plan ahead when you pack your carry-on. Here are some things to keep in mind when traveling:

  • If you are using medication to treat your HAE, make sure to pack enough for your whole trip.
  • If you’re flying, it’s a good idea to get in touch with the TSA to make sure you know the most current rules on flying with medication. You might also consider bringing a doctor’s note to help explain your condition if you’re questioned by airport security.
  • In case of an emergency, make sure you know where the nearest hospitals and emergency rooms are in the area where you’ll be traveling, and keep your emergency contact info handy.
  • If you should happen to need medical attention while you’re out of town, it’s a good idea to bring information about HAE along with you in case you need to explain it to a doctor who is unfamiliar with the condition. It’s also a good idea to keep your medical ID and your insurance information handy.

It took me longer to leave the country for the first time, but I did it eventually. I wanted my HAE story to look different than others I had seen.

ChaeliDiagnosed with
HAE in 1997
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