When it comes to life with hereditary angioedema (HAE), we should never settle. Every day is a new opportunity to become a united force, committed to doing more to manage it. For all of us,
IT'S TIME TO TAKE CHARGE
BY BEING PROACTIVE AND LEARNING MORE ABOUT HAE.
Understand the
Impact of HAE
people living with HAE
experience anxiety
In a 2017 survey of 445 patients
people living with HAE
reported difficulty
with social activity
In a 2017 survey of 445 patients
Patients reported that HAE symptoms prevented them from applying to certain types of jobs
from a survey of 457 US-based patients with HAE conducted in 2007-2008
TAKE THE LEAD
IN TALKING ABOUT HAE
HAE affects everyone differently, and management needs may change over time. So, communicating what matters to you, regularly and in a way your doctor understands, is critical. Together with your doctor you can tailor HAE management to fit your specific needs. Take advantage of our doctor discussion guide to help.
Our HAE care is important. We must be unwavering despite our fears, strong when faced with our insecurities, and brave in standing up and advocating for ourselves.
OUR VOICE MATTERS.
–CHAELI, living with HAE
TODAY AND EVERY DAY,
DO MORE TO MANAGE HAE
When it comes to management for HAE, there are important decisions to make and steps to take. There isn’t a one-size-fits-all management plan because the severity of HAE symptoms can vary from person to person and people also have different preferences or life circumstances.
That’s why it’s so important to work closely with your doctor to create a management plan that’s right for you. See the 2020 US HAEA Guidelines for recommendations for the management of HAE.
Somebody telling me that I shouldn’t go to college because he couldn’t explain this illness–that was really unacceptable to me. And I think that was a turning point for me. I was
more determined than ever to live my life
–LIZ, living with HAE
TURN CONVERSATION
INTO ACTION
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