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Diagnosed with
HAE in 1997

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Talking about HAE

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Most people are compassionate and understand, um, but every now and then, somebody will look at you and you can see the fear and, and you know how they’re repulsed by what they see. And it’s understandable because it can be really disfiguring when you have a bad attack of HAE. A common question that’s usually presented is, um, what’s wrong with you? What is that? Is it contagious? And so, um, usually, I try to simplify the answers without getting too technical into what technically hereditary angioedema is. Some people are just not in the know and have no idea about the disease and so, most people are interested in at least getting the facts and the fundamentals of what hereditary angioedema is all about.