HAE & Family

“I found myself heartbroken when my daughter began to display symptoms of HAE in her teens. I couldn’t stand the thought of her going through the suffering I had experienced.”

Marsha — Diagnosed with HAE in 1989

HAE & Family

HAE is usually passed down through families, but that's not always the case. Some people develop HAE because of a spontaneous change in their genetic code, so it can't always be traced to a relative.

Family history. Inherited gene, 75%. No Family history, 25%.

In a survey, HAE patients had an average of two immediate and two extended family members who had also been diagnosed with HAE.* If one parent has it, each child will have a 50% risk of inheriting the condition. Would you like to track your family's history of HAE? Fill in your family tree.

We understand that talking about any health matter with others, especially a hereditary condition, isn't always easy. Because HAE is rare, some doctors may not be familiar with the condition. You can help empower your family members to discuss the condition with their doctors and encourage them to get tested.

*In a global survey of 313 patients.

Learn more about HAE

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