Digital Awareness Kit

"Awareness changed my way of thinking: there were options, there were choices, there were resources to help me on my journey."

Lesa — Diagnosed with HAE in 1980

Discover support for HAE conversations

Because hereditary angioedema (HAE) is a rare disease, the people who live with it might regularly find themselves having to explain their condition to others. The information in this kit provides key facts about HAE. Use it to help understand your own condition and share important information about HAE with others.

The Digital Awareness Kit contains a variety of resources you can start using right now. Just fill in the form below and select the resources you'd like to explore. When you do, you'll also gain access to other helpful information from, like email updates and important announcements.

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If, at any time, you no longer wish to receive communications from Shire, you can opt out by calling 1-866-888-0660. Please see our privacy policy.

Now, select the resources you want

HAE Family Brochure

A helpful guide that explains the hereditary aspect of HAE and the importance of screening family members.

HAE Family Health Tree Worksheet

A useful resource for gathering vital information about your family’s history of HAE.

Customizable Letter

A helpful tool that people with HAE can use to inform teachers, employers and others of their condition.

Frequently Asked Questions

A quick educational tool that answers common questions about HAE and helps spread awareness of the condition.

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